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Caring for Loved Ones with Intellectual and Developmental Disabilities and Dementia

Caring for Loved Ones with Intellectual and Developmental Disabilities and Dementia

Caring for a loved one with intellectual and development disabilities (IDD) already presents a unique set of challenges from those faced by most caregivers. When a loved one with IDD presents with changes in behavior, memory and sometimes mobility, those challenges are then joined with the challenges of being a dementia caregiver—and can often feel confusing, overwhelming and at times even too much to handle.
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Understanding and Managing Dementia-Related Behavior Changes

Understanding and Managing Dementia-Related Behavior Changes

A loved one with dementia will experience many changes as the disease progresses. Though dementia is most commonly associated with memory loss, the changes dementia causes to the brain impact more than just memory—personality and behavior can be affected as well. We may feel that a loved one with dementia isn’t “acting like themselves” or that their actions might be “uncharacteristic.” Sometimes this can manifest in small ways, like being less alert than usual, or being more talkative around strangers. Other times, they may say or do something much more difficult to handle, like having an outburst of anger in public or making a sexually inappropriate comment. 
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