Impact of Family Members on Nurse Assistants What Helps, What Hurts This qualitative study focuses on nurse assistant reports of both positive and negative behaviors exhibited by family members of cognitively impaired residents. The information reported is obtained from in-person interviews with 114 nurse assistants in 5 skilled nursing facilities (3 philanthropic, 2 proprietary) in Greater Cleveland, Ohio. Nurse assistants were predominantly female (89 percent), white (60 percent), with a mean age of 33, and had been caring for cognitively impaired nursing home residents for an average of five years. Content analyses of nurse assistants’ responses reveal five categories of family members’ positive behaviors and four categories of negative behaviors. This article focuses on these themes and suggests topics for educational interventions for family members and nurse assistants who care for cognitively impaired nursing home residents. Topics include coping with family members’ feelings of guilt and related behaviors, understanding longstanding family relationship issues, and understanding possible reasons for decisions family members make regarding care of their relatives. Read more
Decision-Making for Persons with Cognitive Impairment and Their Family Caregivers Despite the large number of persons affected by cognitive impairment, very little is known about how they and their families make choices and decisions about everyday living and long-term care. Moreover, few studies have examined the concept of consumer direction, particularly the ability of cognitively impaired persons to delegate decision-making to other persons. This study explored decision-making through personal interviews with 51 respondent pairs, or dyads (i.e., the cognitively impaired person and the family caregiver). Results suggest that persons with mild to moderate cognitive impairment are able to answer questions about their preferences for daily care and to choose a person, usually a spouse or adult child, to make a variety of decisions on their behalf. By recognizing both voices—those of the care receiver and the family caregiver—we can enhance future research and practice, foster the development of consumer direction in long-term care, and advance public policy to support caregiving families. Read more
Case Management for Caregivers This article originally was prepared as a resource guide to assist the nation's Area Agencies on Aging as they begin developing or expanding services for the caregivers of older adults. A seminal question they face is how to provide case management service for this particular target population. The article reviews the literature on case management service generally, including its goals, functions, models, and outcomes. Its primary purpose, however, is to explicate the specific issues for providers to consider when planning and implementing case management service for caregivers. The article concludes with recommendations based on the results of evaluation research to maximize the benefits of caregiver services. Read more
Caregiving as a Dyadic Process Perspectives from Caregiver and Receiver Most family caregiving research has relied on the perspective of the caregiver but has not systematically examined the views and opinions of the elder who is receiving care. The present study examined 63 caregiving dyads to determine how the responses of each member had an impact on the well-being of the other member of the dyad. Caregiver relationship strain predicted his or her own depression and negative health, but no significant association was found between caregiver and care recipient outcomes. Multilevel modeling was used to assess the level of dyadic discrepancy over the care recipient’s needs and appraisal of caregiving difficulties. Results indicate that there is little disagreement over the care recipient’s needs, but a significant amount of variation in how much the care recipient and caregiver agree on their appraisals of caregiving difficulties. Relationship strain perceived by the caregiver, but not the care recipient, was significantly associated with this disagreement. Read more
The Stress Process of Family Caregiving in Institutional Settings Purpose: This study adapts the Stress Process Model (SPM) of family caregiving to examine the predictors of depression in a sample of caregivers (n = 133) with demented relatives residing in suburban skilled nursing facilities. Design and Methods: We interviewed family caregivers of family members residing in skilled nursing homes using a variety of measures to assess primary stressors, secondary strain, nursing home stressors, and caregiver depression. We used block-wise regression analyses to determine the predictors of caregiver depression. Results: Results indicated that positive resident adjustment to placement was best predicted by the closeness of the resident–caregiver relationship and nursing home stressors. Caregiver strain, resident adjustment, and nursing home stressors best predicted caregiver adjustment. In turn, the best predictors of caregiver depression included caregiver age, caregiver adjustment to the nursing home, and nursing home stressors. Implications: These results suggest that caregiver depression is closely linked to how well both the resident and caregiver adjust to the nursing home environment. Results also indicate that by broadening the SPM to include stressors common to the nursing home experience, researchers will be able to understand more clearly the specific components of the stress process that may lead to depression in family caregivers of persons living in nursing homes. Read more
The Influence of Formal and Informal Helpers on Primary Caregivers’ Perceptions of Quality of Care Primary caregivers’ perceptions of the overall quality of care given to their impaired elderly relatives are more strongly related to the perceived helpfulness of selected formal care providers (home aides, physicians, and social workers) than to the perceived helpfulness of selected kin caregivers. Caregiver race and age, the types of other family members who are helping, and whether a nurse is involved influence caregivers’ perceptions of the helpfulness of these formal care providers. Read more
Predictors of Institutionalization for Persons with Alzheimer’s Disease and the Impact on Family Caregivers This study examines the factors which differentiate family caregivers who placed (n = 284) versus continued to provide in-home care (n = 642) to relatives with dementia over a 2-year period. Caregiver variables (i.e., income, kin relations, depression, burden, physical health, and social support) and care receiver variables (i.e., level of functional impairment and age) were entered into a logistic regression analysis predicting subsequent placement versus continuing care at home. Results indicate that compared to continuing care subjects, caregivers most likely to place their family member were more depressed, caring for impaired relatives with more problem behaviors (e.g., wandering, inappropriate behavior) and receiving respite assistance. After placement, caregivers were found to be more burdened and to have declined slightly in their levels of subjective physical health. Findings suggest that interventions for family caregivers before and after placement may be beneficial in alleviating the negative effects of this stressful transition. Read more
