Protecting a Loved One from Financial Exploitation Financial exploitation or abuse of older adults occurs when a person’s resources are used by another for personal profit or gain, or when actions are taken that deprive an older person of the benefits entitled to them. No one is immune. This sort of theft can happen to anyone regardless of social standing and education levels. Read more
Reducing the Financial Fatigue of Caregiving There are many rewards of caring for a loved one, but caregiving can also come at a cost. According to several studies, the average female caregiver loses more than $324,000 during their lifetime in wages, pensions and Social Security benefits, due to their caregiving responsibilities. Read more
Recognizing the Signs of Financial Abuse It is important for all of us to know the signs of financial exploitation so we can help prevent this from happening to our loved ones, such as our parents, grandparents, aunts, uncles or dear friends. There are several warning signs to look for and then to question further. Read more
Taking ACTION to Manage Dementia Care Caring for a loved one with dementia can oftentimes go hand-in-hand with challenging situations that may lead us to feel stress and uncertainty about how to manage our loved one’s care. It can become overwhelming, especially for one person, but there are steps we can take to minimize the burden and make progress. Action planning gives us guidance and support to meet our caregiving needs and manage our loved one’s care by breaking down larger goals into small, manageable steps towards solutions to potential challenges. Read more
7 Tips to Help a Loved One Bathe If our loved ones need assistance with bathing, it can be an uncomfortable experience for them to involve us, but it may be necessary for their health and well-being. We should be open with our loved ones about their bathing needs, and, if necessary, enlist the assistance of a doctor in stressing the importance of receiving help in this area. We can ask our loved ones their preferences regarding who they would like to have help them with this task. If the task falls to us, we can follow these tips to help make the experience go smoothly. Read more
3 Ways to Help an Older Loved One With Spring Cleaning With the arrival of spring comes the season of cleaning, decluttering and organizing the household. If we are caring for an older loved one, giving them a hand with their annual spring cleaning may not only make for a meaningful Easter gift, but can also help keep them safe and protected in their home. Read more
Well-being in dementia: a cross-sectional dyadic study of the impact of multiple dimensions of strain on persons living with dementia and their family care partners. Background and Purpose:The impact of dementia-related stressors and strains have been examined for their potential to threaten the well-being of either the person with dementia or the family care partner, but rarely have studies considered the dyadic nature of well-being in dementia. The purpose of this study was to examine the dyadic effects of multiple dimensions of strain on the well-being of dementia care dyads. METHODS: Using multilevel modeling to account for the inter-relatedness of individual well-being within dementia care dyads, we examined cross-sectional responses collected from 42 dyads comprised of a hospitalized patient diagnosed with a primary progressive dementia (PWD) and their family care partner (CP). Both PWDs and CPs self-reported on their own well-being using measures of quality of life (QOL-Alzheimer's Disease scale) and depressive symptoms (Center for Epidemiological Studies Depression Scale). RESULTS: In adjusted models, the PWD's well-being (higher QOL and lower depressive symptoms) was associated with significantly less strain in the dyad's relationship. The CP's well-being was associated with significantly less care-related strain and (for QOL scale) less relationship strain. CONCLUSIONS: Understanding the impact of dementia on the well-being of PWDs or CPs may require an assessment of both members of the dementia care dyad in order to gain a complete picture of how dementia-related stressors and strains impact individual well-being. These results underscore the need to assess and manage dementia-related strain as a multi-dimensional construct that may include strain related to the progression of the disease, strain from providing care, and strain on the dyad's relationship quality. Read more
Meeting the Informational, Educational, and Psychosocial Support Needs of Persons Living With Dementia and Their Family Caregivers Background and Objectives: Meeting the unique and changing needs of individuals living with Alzheimer’s disease and their family caregivers can be very challenging given the dynamic and often unpredictable nature of the disease. Effective programs are available to help families manage the challenges they will face. Research Design and Methods: This article first describes the educational, information, and support needs of individuals living dementia and their family caregivers across all stages of Alzheimer’s. Next, we describe the variety of services and program models targeted to the needs of individuals living with Alzheimer’s disease or other types of dementia and their families. Results: These programs can help ensure that person- and family-centered care is maintained from time of first symptoms through end-of-life. Discussion and Implications: We end with our recommendations for maintaining person- and family-centered care through the provision of targeted information, education, and support to individuals and their families. Read more
Incongruent Perceptions of the Care Values of Hospitalized Person With Dementia A Pilot Study of Patient-Family Caregiver Dyads Objective: Many difficult decisions are made in the inpatient hospital setting regarding the daily care of persons with dementia (PWDs). Incongruent perceptions of the PWD’s care values limit the family caregiver’s ability to make surrogate decisions. The objectives of this pilot study were to describe and identify determinants of incongruent perceptions in the hospital setting. Methods: Using multilevel modeling (MLM), we examined cross-sectional data collected from 42 PWD-family caregiver dyads. Results: There was a significant amount of incongruence, on average, for all four subscales representing the PWD’s care values: autonomy = - 0.33 (p < .001); burden = - .49 (p < .001); safety/quality of care = -.26 (p < .001); and social interactions = - .21 (p = .004). Family caregivers (CG) rated the importance of care values to the PWD as lower than the PWD rated the importance. Determinants of greater incongruence included higher relationship strain and fewer positive dyadic interactions. Conclusion: Our findings reveal significant levels of incongruence in perceptions of the PWD’s values among dementia care dyads in the hospital setting. Our analysis suggests a potential impact of relationship variables on incongruence. Further research is needed around this overlooked interpersonal context for supporting the dementia care dyad in the hospital setting. Read more
Does it Matter if we Disagree The Impact of Incongruent Care Preferences on Persons with Dementia and Their Care Partners Purpose: To gain a better understanding of how actual and perceived incongruence of care preferences affects the psychosocial well-being of persons with dementia and their family caregiver. Design and Methods: In-depth interviews were conducted with 128 dyads each consisting of a person with dementia and a family caregiver. Baseline data from an intervention study were used to examine the relationship between the caregiver’s care-related preferences, the person with dementia’s care-related preferences, and the caregiver’s perception of the person with dementia’s preferences. Preferences for three care-related domains were recorded: personal activities of daily living (PADLs), instrumental activities of daily living (IADLs), and socioemotional issues. Primary outcomes included dyadic relationship strain, quality of life, and mood for both the caregiver and person with dementia. Results: Perceived incongruence of care preferences was a better predictor of negative psychosocial outcomes than actual incongruence. Actual incongruence for socioemotional care preferences was a predictor of greater relationship strain and worse mood for the person with dementia, whereas perceived incongruence for socioemotional care preferences was related to lower quality of life and worse mood for the caregiver. Interestingly, perceived incongruence for PADLs predicted higher quality of life and better mood for the caregiver. Implications: Findings have implications for communication between care partners, especially regarding socioemotional care preferences. Socioemotional preferences, which might be overlooked in the creation of a care plan, may influence the person with dementia’s well-being. Read more
